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Global Patient Organizations

There are Patients Organizations all around the world for you to join. They provide support, knowledge, and a social environment for patients and families to learn from each other’s journeys and experiences.

INTERNATIONAL

Argentina
AAPIDP–Asociacion de Ayuda al Paciente con Immunodeficiencia Primaria
www.aapidp.com.ar
info@aapidp.com.ar

Australia
IDFA–Immune Deficiency Foundation Australia
www.idfa.org.au
info@idfa.org.au

Austria
ÖSPID–Österreichische Selbsthilfegruppe primärer Immum Defekte
www.oespid.at
modl.karin@gmx.at

Belarus
Let's Save the Immunity
Andron116@yandex.ru

Belgium
BOPPI–Belgian Organisation for Patients with Primary Immunodeficiencies
www.boppi.be

Bosnia
POPID-Udruženje za podršku osobama sa Primarnom Imunodeficijencijom
dzenita.subasic@sos-ds.ba

Brazil
ABRI–Assossiação Brasileira de Imunodeficiência
www.abri.com.br
info@abri.com.br
ANPIC–Associação Nacional dos Portadores de Imunodeficiência Primária Congênita
www.anpic.org.br
anpic@anpic.org.br 

Bulgaria
Association of People with Congenital Immunodeficiency
stoil_lazarov@abv.bg

Canada
Immunodeficiency Canada / Immunodéficience Canada
www.immunodeficiency.ca
contactus@immunodeficiency.ca
CIPO–Canadian Immunodeficiencies Patient Organization
www.cipo.ca
Info@cipo.ca

Chile
Vida por la Vida
Corporación Chilena de ayuda para los Pacientes con Inmuno Deficiencias Primarias
vidaporlavida@gmail.com 

Colombia
Fundacion Diana Garcia de Olarte
www.fundacionfip.org.co
fundacionfip@gmail.com

Cyprus
Cyprus PI Association and Friends
Maria.g.charalambous@cyta.com.cy

Denmark
Immun Defekt Foreningen
www.idf.dk
Information@idf.dk

Egypt
Society of Nada for Egyptian Patients with Primary Immunodeficiency
shereenreda@med.asu.edu.eg

Estonia
Estonian Patient Society for Primary Immunodeficiencies
juhanliiva@gmail.com

Finland
Immunipuutospotilaiden Yhdistys RY
www.imppu.fi
puheenjohtaja@imppu.fi

France
IRIS–Immuno-Déficience Primitive Recherche Information Soutien
www.associationiris.org
info@associationiris.org

Germany
DSAI–Deutsche Selbsthilfe Angeborene Immundefekte e. V.
www.dsai.de
info@dsai.de

Greece
APMONIA–Association of Greek Friends for Pediatric Immunology - Primary Immunodeficiency
www.paed-anosia.gr
manolakakisch@windowslive.com

Hungary
HOPI–Hungarian Patients' Group for Immunodeficiency
hzsu86@gmail.com

Iceland
Lind–Icelandic Organization
gmb@bhs.is

India
IPSPI–Indian Patients Society for Primary Immunodeficiency
www.ipspiindia.org
rubbychawla@ipspiindia.org

Iran
IPIA–Iranian Primary Immunodeficiency Association
www.iranianpia.org
info@iranianpia.org

Ireland
IPIA–Primary Immunodeficiency Association of Ireland
www.ipia.info
ipiasecretary@gmail.com

Israel
IFID–Israel Foundation for Inherited Immune Disorders
advgal@017.net.il
The Israeli Wiskott Aldrich Association
www.was.org.il
office@was.org.il

Italy
AIP–Associazione Immunodeficienze Primitive
www.aip-it.org
info@aip-it.org

Japan
Tsubasa No Kai
www.npo-pidtsubasa.org

Macedonia
Parent Organizion of Children with Primary Immunodeficiency
kstavric@hotmail.com

Mexico
Asociacion Mexicana de Ayuda a Pacientes con Inmunodeficiencias Primarias (AMAPIP)
amapip.org.mx
contacto@amapip.org.mx
Fundación Mexicana Para Niñas Y Niños con Inmunodeficiencias Primarias A.C.
fumeni.org.mx
contacto@fumeni.org.mx

Morocco
Hajar–Association d'aide aux Enfants
www.hajar-maroc.org
Aabousfiha@menara.ma

Netherlands
Stichting voor AfweerStoornissen
www.stichtingvoorafweerstoornissen.nl

New Zealand
IDFNZ–Immune Deficiencies Foundation of New Zealand
www.idfnz.org.nz
info@idfnz.org.nz

Norway
Norsk Immunsviktforening
www.immunsvikt.no

Peru
ASPAIP–Asociacion Peruana de Ayuda al Inmunodeficiente Primario
aspaipperu@outloock.com.pe
Saving Children with Agammaglobulinemia (Salvando A Los Niños Con Agammaglobulinemia)
www.savingagammaglobulinemiapatients.org
savingagammapatients@gmail.com

Poland
Immunoprotect–Association for Patients with Primary Immunodeficiency
www.immunoprotect.pl
biuro@immunoprotect.pl
Wish for Immunity Foundation
www.wymarzonaodpornosc.pl
biuro@wymarzonaodpornosc.org

Portugal
APDIP–Associacao Protuguesa de Doentes com Imunodeficiencia Primaria
www.apdip.pt
geral@apdip.pt

IPOPI–International Patient Organization for Primary Immunodeficiencies
www.ipopi.org
Info@ipopi.org

Romania
ARPID–Romanian Association for Patients with Primary Immunodeficiency
www.arpid.ro
arpid_life@yahoo.com

Russia
Sunflower–The Association for Primary Immunodeficient Patients
www.fondpodsolnuh.ru
fond@fondpodsolnuh.ru

Serbia
POsPID–Support of Persons with Primary Immunodeficiency
www.pospid.org.rs

Slovenia
Drustvo za pomoc otrokom z imunskimi bolesnimi
tadej.avcin@kclj.si

South Africa
PINSA–Primary Immunodeficiency Network of South Africa
www.pinsa.org.za
pinsahelp@mweb.co.za

South Korea
Primary Immunodeficiency Families Association (일차면역결핍증환우회- Korea) 
www.pidfan.ba.ro
pidsouthkorea@gmail.com

Spain
ACADIP–Associació Catalana de Déficits Immunitaris Primaris
www.acadip.org
secretari@acadip.org
AEDIP–Asociación Española de Déficits Inmunitarios Primarios
www.aedip.com
aedip@aedip.com
Barcelona PID Foundation

www.pidfoundationbcn.org

Sweden
PIO–Primaer Immunbrist Organisationen

www.pio.nu
pio@telia.com

Switzerland
SVAI–Schweizerische Vereinigung fur Angeborene Immundefekte
www.svai.ch
info@svai.ch

Tunisia
Joie De Vivre
associa.joiedevivre@yahoo.fr

Turkey
Immun Yetmezlik Dernegi
www.imyed.org.tr
info@imyed.org.tr

United Kingdom
CGD Society–Chronic Granulomatous Disease Society
www.cgdsociety.org
hello@cgdsociety.org
The XLP Research Trust
www.xlpresearchtrust.org
PID UK–Primary Immunodeficiency UK
www.piduk.org
hello@piduk.org

United States
Hereditary Angioedema Association
www.haea.org
Hyper IgM Foundation
www.hyperigm.org
info@hyperigm.org
IDF–Immune Deficiency Foundation
www.primaryimmune.org
idf@primaryimmune.org
LAPIN–Louisiana Primary Immunodeficiency Network
www.lapininc.org
lapin@lapininc.org
Nemo Foundation
andy@andy.org.mx
NEPIN–New England Primary Immunodeficiency Network
www.nepin.org
stan@nepin.org
SAPI-Stanford Alliance for Primary Immunodeficiency
www.primaryimmune.stanford.edu
SEPIN–Southeast Primary Immunodeficiency Network
cramos@medicalchampion.com
Wiskott Aldrich Syndrome Foundation
www.thewasfoundation.org
info@wiskott.org

Uruguay
AUPIDP–Asociacion Uruguaya de Pacientes con Immunodeficiencias Primarias 
aupidp.inmunodeficienciasprimarias@facebook.com

Venezuela
IDP–Inmunodeficiencias Primarias Venezuela
idpvenezuela@gmail.com

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